In recognition of World Sickle Cell Day, Cayenne Wellness Center and the Global Alliance of Sickle Cell Disease Organizations (GASCDO) will host the 7th Annual 24-Hour World Sickle Cell Day Marathon on June 19, 2026. The free virtual event aims to unite patients, caregivers, advocates, healthcare professionals, researchers, policymakers, and community leaders worldwide for a full day of education, awareness, advocacy, and action centered around the theme "Closing the Survival Gap: Equity in Sickle Cell Care." This theme highlights persistent disparities in access to diagnosis, treatment, mental health services, research opportunities, and quality care experienced by individuals living with sickle cell disease globally.
World Sickle Cell Day, recognized annually on June 19, seeks to increase public awareness and understanding of sickle cell disease and the challenges faced by patients, families, and caregivers. The marathon will feature sessions from global experts and community leaders representing multiple countries and regions, covering topics such as healthcare equity, mental health, caregiver experiences, legislative advocacy, blood donation and stem cell registries, data collection, media representation, and innovations in sickle cell care. Featured sessions include "Warrior Speaks," where individuals share personal journeys; "SCD Shaping Siblings," exploring family dynamics; "The Role of a Caregiver and the Fight Against SCD"; "Mental Health and Sickle Cell Disease"; and "Closing the Survival Gap in Sickle Cell Disease: From Crisis Care to Chronic, Continuous Care." Community engagement activities, support groups, author conversations, and patient storytelling sessions will also be offered.
"This event was created to ensure that people affected by sickle cell disease know they are not alone," said Dr. Carolyn Rowley, Founder and Executive Director of Cayenne Wellness Center. "By bringing together voices from across the globe, we can elevate awareness, strengthen advocacy efforts, and push for the equitable care every person living with sickle cell disease deserves." The event is supported by sponsors including Advocate Sponsor Agios Pharmaceuticals and Community Sponsor Fulcrum Therapeutics.
Registration is free and open to the public. To register, visit https://rebrand.ly/wscd2026. For more information, see the event website at https://sicklecellday.com.
